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Living with DBA
Apr 2016
New to DBA? Read the simple explanation →
- Diagnosed with Diamond-Blackfan Anaemia in April 2016, just before turning three.
- A blood transfusion every three weeks at Falu lasarett.
- Play therapists (“Överlekare”) Mats & Helena making every visit a little brighter.
- Chelation therapy: Desferal via a needle button and pump, five evenings out of seven, all year round.
- Contacts with Akademiska Uppsala, Lund Stem Cell Center and Uniklinikum Würzburg.