Hej & welcome!
This is our family blog about our awesome and curious boy Viktor – V – who loves animals, Lego, technology and being outdoors in Dalarna. V has Diamond-Blackfan Anaemia, but this blog is mostly about all the fun things we do anyway.
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Our hospital story – born early, the blood clot in the brain (sinus thrombosis) in 2016, and life with DBA – lives in a password-protected corner of the site.
Enter the family area 🔒What is Diamond-Blackfan Anaemia?
DBA is a rare blood disorder. Red blood cells carry oxygen to all other cells in the body and are normally made in the bone marrow. In children with DBA, many of the cells that would have become red blood cells fail to develop – so people like Viktor need regular blood transfusions to live. V gets one every three weeks.
A HUGE thank you to everyone who donates blood! PS: TACK! ❤️
Become a blood donor (GeBlod)DBA explained simply →