this is V's world →

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V practising the drums

Hej & welcome!

This is our family blog – mostly about Viktor (V for short) and whatever he's into right now: animals, Lego, tech, chess, BJJ, gaming and being outdoors.

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Our hospital story – born early, the blood clot in the brain (sinus thrombosis) in 2016, and life with DBA – lives in a password-protected corner of the site.

Doctor or DBA researcher? We're happy to share journal data – reach out!

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What is Diamond-Blackfan Anaemia?

DBA is a rare blood disorder. Red blood cells carry oxygen to all other cells in the body and are normally made in the bone marrow. In children with DBA, many of the cells that would have become red blood cells fail to develop – so people like Viktor need regular blood transfusions to live. V gets one every three weeks.

A HUGE thank you to everyone who donates blood! PS: TACK! ❤️

Become a blood donor (GeBlod)DBA explained simply →
Viktor at the blood centre in Falun